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Nyumbani HIV Children..

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Kusadikika		#1 Posted : Monday, September 26, 2016 10:20:31 PM
Rank: Elder Joined: 7/22/2008 Posts: 2,702		Nyumbani was started in 1992 (24 years ago) to take care of children who had been born with HIV. Does anybody know of any long term study of those children? I would be particularly interested in the study of the group of first 4 years (20 years later): How many have survived? What is their health status? Are they still taking medication? Do they still have the virus?
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enyands		#2 Posted : Tuesday, September 27, 2016 5:16:20 AM
Rank: Elder Joined: 12/25/2014 Posts: 2,300 Location: kenya		Kusadikika wrote: Nyumbani was started in 1992 (24 years ago) to take care of children who had been born with HIV. Does anybody know of any long term study of those children? I would be particularly interested in the study of the group of first 4 years (20 years later): How many have survived? What is their health status? Are they still taking medication? Do they still have the virus? I think these are sensitive questions that no statistician is willing to share publicly especially on issues about HEALTH-HIPPA laws (HIV)and children in particular.a consent is necessary...
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Mtafiti		#3 Posted : Tuesday, September 27, 2016 5:45:56 AM
Rank: Member Joined: 5/22/2014 Posts: 321 Location: Ndeiya		I thought Nyumbani village is a catholic church centre for children from poor background orphaned by their parents as a result of Hiv/Aids. That is why they host those children together with their guardian cucu's. If we are talking of the same thing, why not visit their HQ at Karen near The Hub, or go to their big centre at Kwa Vonza in Kitui for that info?
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mkenyan		#4 Posted : Tuesday, September 27, 2016 7:16:55 AM
Rank: Veteran Joined: 4/1/2009 Posts: 1,883		enyands wrote: Kusadikika wrote: Nyumbani was started in 1992 (24 years ago) to take care of children who had been born with HIV. Does anybody know of any long term study of those children? I would be particularly interested in the study of the group of first 4 years (20 years later): How many have survived? What is their health status? Are they still taking medication? Do they still have the virus? I think these are sensitive questions that no statistician is willing to share publicly especially on issues about HEALTH-HIPPA laws (HIV)and children in particular.a consent is necessary... cant they have stats without names?
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Wamunyota		#5 Posted : Tuesday, September 27, 2016 9:21:08 AM
Rank: Veteran Joined: 6/23/2014 Posts: 1,652		Kusadikika wrote: Nyumbani was started in 1992 (24 years ago) to take care of children who had been born with HIV. Does anybody know of any long term study of those children? I would be particularly interested in the study of the group of first 4 years (20 years later): How many have survived? What is their health status? Are they still taking medication? Do they still have the virus? You can go and talk to the sister in charge.She is very friendly and may give you the stats that you need. Hutia Mundu!!
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Intelligentsia		#6 Posted : Tuesday, October 18, 2016 4:33:39 PM
Rank: Elder Joined: 10/1/2009 Posts: 2,436		I once volunteered there, cleaned their dorms, played with them, fed and talked with them - have always had an interest in the home. @Kusadikika, those are valid qstns any researcher would want to know, but sheria za watoto na privacy...
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enyands		#7 Posted : Tuesday, October 18, 2016 7:53:18 PM
Rank: Elder Joined: 12/25/2014 Posts: 2,300 Location: kenya		Intelligentsia wrote: I once volunteered there, cleaned their dorms, played with them, fed and talked with them - have always had an interest in the home. @Kusadikika, those are valid qstns any researcher would want to know, but sheria za watoto na privacy... There are people who would like to donate directly to the home, not money wise but buy food,grains and all that, but identity to remain anonymous, who is reliable honest contact person to be reached.asking for a friend
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Intelligentsia		#8 Posted : Wednesday, October 19, 2016 4:12:46 PM
Rank: Elder Joined: 10/1/2009 Posts: 2,436		enyands wrote: Intelligentsia wrote: I once volunteered there, cleaned their dorms, played with them, fed and talked with them - have always had an interest in the home. @Kusadikika, those are valid qstns any researcher would want to know, but sheria za watoto na privacy... There are people who would like to donate directly to the home, not money wise but buy food,grains and all that, but identity to remain anonymous, who is reliable honest contact person to be reached.asking for a friend Pole baba, not sure now who you can contact on this for now, nasikitika.
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Museveni		#9 Posted : Wednesday, October 19, 2016 7:32:13 PM
Rank: Member Joined: 8/16/2012 Posts: 660		Dala Kiye http://karungu.net/en/progetti-sociali/ Live and learn; and don’t forget, nothing ventured, nothing gained.
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